Tuesday, August 17, 2010

What's wrong with everyone?

Not much has changed. I'm still here, and I'm still mad. And I'm even mad about being mad.

I've never been an angry person. I've dealt with a lot of crap, and I haven't let it get to me, for the most part. I've never been one to hold grudges. My college degree is in psychology. I understand grief. I get that this is part of it. I just don't have time for it. Go away, grief.

Part of it is that this year, we are participating in the JDRF Walk for a Cure. As great and positive as it is, and as good as it feels to DO SOMETHING, it's intensifying things. I take it so personally. We sent out this letter via email with a link to our website and our walk video, and in the words of Laura, "...crickets..."

Don't get me wrong. We didn't expect every single person to write back. We certainly didn't expect most people to donate. Or to join our walk team. And we have been blown away by the number of people who have. It's the people who haven't so much as mentioned it that we were sure would. Family. Close friends. And it's REALLY getting to me.

Mainly because we made ourselves so vulnerable in all this. Since Liam's diagnosis, we've done all we can to maintain our image of strength. I can't say whether it's been more to convince the people around us that we can handle this, or to convince ourselves and our precious little boy. Probably both, to different degrees. We don't fall apart. We don't complain much. We just do what needs to be done, and forge on. On top of that, we live hundreds of miles away from the family and friends we have known our whole lives. Most of them have seen us twice since Liam's diagnosis, if that. They don't see us aging as we go night after night on hardly any sleep. They don't watch us as we work frantically behind the scenes doing all the things we do as pancreases- before we even get to be "parents." They don't hear the heartbreaking questions Liam asks us. They don't know what this "type 1 diabetes" thing is. So more than I wanted their support, their sympathy, I just wanted them to KNOW, as much as they can, what it is we DO around here.

So when all was quiet after our letter, after it was posted on facebook a few times and we STILL hadn't heard a thing from most people... I started to stew a little bit about it. When my husband got a page up on facebook for our walk team and supporters, I sent the invites out to several of these people. A couple surprised me. Most did not.

One, in particular has me especially angry. This girl and I were inseparable the first two years of our boys' lives. We started to grow apart when I had to go back to work, and then we both moved away. Things just got busy and the calls became fewer and further between. Nonetheless, this person is A) Human. B) A mom. C) In possession of a little boy who is 2 weeks older than my son, who does NOT have to worry about diabetes.
When her son was diagnosed with a slew of overwhelming food allergies at 2 years old and she was a mess, I took time out of my lunch break to go grocery shopping at specialty stores and brought her bags and bags of groceries that he COULD eat when it seemed like everything was about to change and he couldn't eat anything.  Because that is what friends DO. And with everything we are going through now, she can't even click "like" on my damn facebook page when explicitly invited to. It just ... I don't really know. I'm hurt. I'm angry.

And it's not just her. It is taking every ounce of willpower to not just go through my friends list and scream "UNFRIEND!!!!" while deleting each and every one of them who won't so much as click a box for me. For Liam.

I feel so isolated as it is. And this JDRF walk has made it so glaringly obvious how removed I've become from my friends. My old life. These people feel like strangers.

11 comments:

  1. Hi Jessica, You're such a lovely and caring person. I empathize with you and your frustrations, as I've gone thru the same feeling. Its a feeling that no one seems aware or cares that you're hurting and struggling to do the best you can, especially when you've done so much for others. It's best to remember to stay positive. One of my favorite quotes is:
    Life is too short to wake up with regrets. So love the people who treat you right. Forget about those who don't. Believe everything happens for a reason. If you get a chance, take it. If it changes your life, let it. Nobody said life would be easy, they just promised it would most likely be worth it." Hugs,GA

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  2. Hi Jessica...I started your first two sentences...then decided to grab a cup of coffee and really sit here and take my time reading and responding dear friend. It is so hard to feel isolated from that life that we once lived. It is sooo different now (I actually am so far removed from the pre-D life... I have forgotten what it was even like... or if I even had friends that hurt me this way in which you are speaking of). It is funny how our "expectations" of others can really lead to such disappointment. I know I have been disappointed over the years due to how I think things will go...with a JDRF Walk, or with a vacation, or with a visit to see family etc. With the walk I would just ask people if they are able to "make it"...that it would really mean a lot to you and Liam for people to "take pause" in their lives to acknowledge the workload of Liam's daily routine.

    (((HUGS)))

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  3. I don't have much to offer except that you are not alone in this, it is not just you and your family, but it seems to be a common thread with all of us. I have a eerily similar post sitting in my draft folder.

    It's sad and it sucks, but I came to a realization a few years ago when one couple who we thought were our best friends decided to start talking about us behind our backs after Elise was born (they have decided to never have kids and don't understand how your life changes when you have them); these aren't the type of people I want as friends anyway. This has given me a chance to step back and see who I can really count on, and then put time and effort into those relationships instead of wasting my time with people who are only there for the good times.

    Sorry for the novel... can't wait to see you guys on Thursday! Love ya sista!

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  4. D-Peeps are cooler anyway. That's all I got. Love you. Hey - - - what's up tomorrow? I missed my invite. :)

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  5. I was nodding my way through your entire post. I have SO been there. I don't know why people distance themselves from those who need them most. I've tried to figure it out, but my brain always goes and makes it personal. The above comments hit the nail on the head.

    A) D Moms rock. Period.
    B) If who we thought were friends can't handle the heat, maybe it's best the get the heck out of our kitchen.

    Love you friend! Raising money for the cure is always personal. I've had to take years off because it was too emotional for me. ((HUGS))

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  6. I have been there too. I had a few surprises step up WAY MORE than those I THOUGHT were a given. The "given"... well some didnt give at all and some... way less than they are able.

    I was SHOCKED to be honest. NO!!!! Make that HURT. REALLY HURT!

    Keep a smile on... if you let it get you down, D wins just a little.

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  7. Yep... I have been there. AND can I just add.. I think even worse are the "friends" that pretend to listen, the ones that nod and blink at you and say "oh, how awful" when you can tell what they are REALLY thinking about is their next shopping spree or trip to Starbucks.
    OK - I sound a little bitter, right? Yeah, I know. I can't help it.
    All I can say, is, THANK GOD FOR D MOMS!!!

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  8. Jessica - you wrote the exact same feelings that I have been having. I didn't do the walk last year because I felt so overwhelmed by everything. This year I didn't want to do it, but Emma did so I have been working on it and it completely stresses me out and I have been sooooo disappointed by the lack of response from people who I thought for sure would be involved. And surprised by others who I didn't think would care that have been involved. It is stressful and emotional.

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  9. I'm so sorry Jessica.

    Sorry about all of this and sorry to be so late to respond.

    Hugs friend.

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  10. We ironically started doing the Step Out walk two years before our child was diagnosed.

    That first fall after her diagnosis, friends opened their wallets.

    And the next year not so much.

    To tell the truth, we are so tired and so busy that we don't make as huge an effort to fundraise any more. Now we do the walk as something our family can do together. And just being at the walk shows our daughter our support for her.

    We don't do it with a large goal in mind. We do what we can and we are happy with our small contribution.

    This year my daughter had a lemonade stand and raised $40 all on her own. I am proud of her for wanting to be charitable. And for me, that is enough.

    I think that some people don't donate because they have their own issues and own causes that they support. Don't take it personally because I really don't think that people's inaction is about you.

    Just signing up, just showing up, just walking in support of your child, no matter the dollar amount that you can contribute is one step closer to whatever goal you have.

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  11. Wow. I found your blog from my girl Lauras page and I love it. I have been where you are. Shit im still there. It sucks. People can suck. Unless you live it you dont always get it. Dmoms rule as the girls said. So nice to meet you :)

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