I've mentioned how awesome Liam's school has been at working with us to accommodate his needs. They are a private preschool, but they have continued to surprise us with what they have taken on. The main staff person taking care of his diabetes is so awesome that I am heartbroken that she won't be coming to kindergarten with us next year. She has gone above and beyond so many times that I am literally speechless.
While she is great, credit is also due to the director and owner for even allowing the staff to provide any of his care while at school. It is because of them that we get to keep his life the same as before he was diagnosed. They are certainly less hands-on with his care, but every other week when the main person is off, the director often takes over his care. Deep breath.
I really like her. I appreciate her. She takes time from her busy schedule to read to him when he is low and stuck up in the office. She follows him out to my car on days where he has had issues. But her brain works in less of an organized way.
I first got concerned when she forgot to call me before correcting him one day. We had arranged a phone call if he was over 200 so I could adjust his correction down to prevent a low at school. He got a bit more insulin than he needed and a pretty fast and furious crash followed by a stubborn low followed. I reminded her to call if he was over 200. Put a note in his diabetes kit, next to my already overly detailed directions.
The next time I got concerned was when she REMEMBERED to call when he was over 200. I was walking her through the steps to bolus him, and when we got to the part about the carbs he was eating, she said "so I put in the 25 carbs for his snack..." NO!!!!! Not 25! 15! Always 15! Every single TIME, 15 CARBS!!!! We used to do 15 carb snacks before he went on the pump and they were uncovered. When we switched last spring and started pumping, I decided to keep the snack amount the exact same to keep confusion to a minimum. Every day, he gets a bag full of whatever his class is eating. The difference is: I measured his at home so that it is EXACTLY 15 carbs, and then labeled it with a sticker that says: 15 CARBS. So when she said 25- I seriously hoped she knew that was wrong as soon as she said it. I reminded her that ALL snacks are 15 carbs, unless it's a special birthday snack from his classroom- which I will come look at and give her a number to use. Another note in the meter case.
The next time, it was a special snack coming into class. The regular person emailed me the day before to figure out how many carbs we wanted to bolus him for the next day, and I emailed back that I agreed with he assessment. We were going to go with 11 carbs. The director was cc'd into the email, knowing she would be checking him the next day. An hour or so before his snack time, I called and spoke with her to make sure she'd gotten the email and to remind her that we were doing 11 carbs today because of the gingersnaps. She said she saw the email, and that everything sounded great. When I picked him up, he was already lower than I'd like. I checked his pump, and was surprised to see she'd bolused him for 15 carbs. So she remembers the normal amount today (yeah!) but not our conversation an hour beforehand (ummm?).
Last week, everything went according to plan. She called when he was slightly higher than expected to make sure she should proceed normally. I agreed, and we hung up. I got a call an hour later, about 15 minutes before pick up time saying he was 70 with two arrows straight down on his Dexcom. I told her to give him a juice box and I was already on my way. When I got there, she was baffled about why he had dropped so fast. I gave her the "diabetes doesn't always make sense line" and put Liam in the car. Then I checked his pump. She bolused him for 25 carbs. Nearly TWICE what he actually ate.
I just don't know what to do. She isn't required to do ANY of this. From the beginning, I've been cautiously detailed in explaining what CAN happen. How serious it all is. I wanted them to feel the gravity of the situation, but not be so terrified that they wouldn't touch him. I've talked to her, left notes, and I think she just forgets things sometimes. As wonderful as she is, she is a little scatterbrained. This all has happened over the last YEAR. It's not every week that we have an issue. Not very often, considering. But even one time is too often, isn't it? I'm lucky that pick up time is barely more than an hour after snack time, so usually if something funny is up, I can catch it before it becomes serious.
All the same, all of my anal retentive plans and systems to avoid exactly THIS, is failing.
What do I do?
Oh Jessica. I understand where you are coming from. So he is going to the same school for K?
ReplyDeleteI think you have to address it with them as a concern you have because it's happened a few times and what can you do to help prevent it from happening again. Because they are not legally obliged to do any of this, of course you have to be careful, but his health is still the priority. I always try to put it on me - how can I help improve this, what can I do - so they are not on the defensive.
Hugs hon. It's frustrating.
Can I ask though - do they get any government funding at all? Like subsidized lunch or buses? I
Jess, that just plain sucks. I'm sorry. We made up laminated tags for Elise's teacher to wear on a lanyard around her neck that has info like how to use glucagon, and how many carbs to give Elise if she's low... like a cheat sheet of all the most important info. Maybe you could make something like that, so anytime they do anything with Liam's care, they just refer to the tags.
ReplyDeleteI could email you our copies if you'd like.
I am feeling your pain...except mine is with when to check ketones...so not as big of a deal as bolusing for the wrong amount of carbs. It sounds like, from what you posted, that cheat sheets and lanyards may not work...I mean you are already writing this stuff down and sending it in with Liam. UGH.
ReplyDeleteI think it needs to be addressed. Maybe you can sit down with the directer and see what she feels would be the best answer to avoid these issues in the future. I SO hate having to do this stuff. I can tell this school is great and has been very supportive to you and I can so relate to not wanting to offend anyone.
Love to you AND...GOOD LUCK!
How frustrating and scary! I dont think they understand what a small mistake is our world. HUGE. I wish I had good advice. We stll go to the school for all of Js boluses. They only treat lows.
ReplyDeleteGood luck and hugs!
Lo- Not a penny of government funding. He will be going to the regular public school for Kindergarten next year, so we're just dealing with the rest of the spring and maybe summer time?
ReplyDeleteJo- thanks for the offer. I suggested lanyards back in September but they preferred to have big laminated sheets on their classroom/office clipboards- which are their big information thing.
The good news is that the conversation went much more smoothly than anticipated, and we are reinforcing the systems already supposed to be in place- like him bringing his labeled snack to the front office every day with the carb amount on it- in addition to other notes, reminders, etc.
Not only was the front office person fantastic with suggestions- but the director was AMAZING and I could tell she felt horrible. I was so glad she wasn't mad or defensive about things.
Jessica...I'm so happy to hear that conversation went well!!!!!
ReplyDeleteHang in there, my friend!!!!!!
Just keep the conversation going! I'm SO happy she wasn't defensive! ((HUGS)) Thank goodness for dexcom as a backup!
ReplyDeleteI'm late to the party but so glad the conversations went well. Great job, Mama!!! Now can you come handle of this for me and Nate next year???
ReplyDelete